Kate & Andreia: MRKH and being empowered to keep searching for the answer
In this week’s episode, I’m joined by Andreia Trigo @andreiatrigorn, a fellow nurse and the CEO and founder of Enhanced Fertility. We’re talking all about Mayer-Rokitansky-Küster-Hauser also known as MRKH.
Yep, you can be forgiven for not knowing much, if anything about this rare condition that severely impacts your fertility potential. Essentially if you have MRKH you’re born without a womb. Can you imagine how devastating that diagnosis would be and how it would impact you? Imagine finding this all out as a teenager and then in later years realising how this would impact your ability to create a family! Andreia talks about her diagnosis, what she experienced to even get diagnosed in the first place, the accessibility for those who are diagnosed with MRKH, and the first UK uterine transplant.
Andreia’s fertility journey began when she was 17. She was concerned that she hadn't yet had her first period. After being told to come back after a year, she eventually had tests and scans done and one of the scans reported that a uterus was seen on the scan. It wasn’t until later that it turned out to not be the case and Andreia had been incorrectly diagnosed.
A year later, when Andreia was 18, she was diagnosed with MRKH. The process that she went through to get that diagnosis took just over 3 years. This involved invasive and painful investigations and procedures to reach a diagnosis. Something that still haunts Andreia to this day. We talked about whether there has been a change in the way that MRKH is diagnosed in the UK. Andreia tells us how it has and now there is a lot more support and tests that are available to be able to effectively diagnose MRKH promptly. Incredibly, 1 in 5000 women are diagnosed with MRKH. Later on, we talked about the first UK uterine transplant and what this means for women like Andreia.
Andreia is passionate about improving access and decreasing the time to diagnosis and helps women find their way through diagnosis and the next steps. Andreia’s advice to anyone on a fertility journey is, if you feel there is something wrong be persistent and feel empowered to investigate why.
Find out more about Andreia at - https://efp.clinic/
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